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Macmillan Higher Education Palgrave Higher Education

Living With Dementia

Relations, Responses and Agency in Everyday Life

ISBN 9781137593740
Publication Date September 2017
Formats Paperback Ebook 
Publisher Palgrave

Traditionally, dementia has been defined primarily in terms of loss: loss of cognitive and communicative competencies, loss of identity, loss of personal relationships. People living with dementia have been portrayed as increasingly dependent on others, with their loved ones seen more as care givers than as spouses, children and relatives. However, in the last two decades this view of the person living with dementia as an ‘empty vessel’ has been increasingly challenged, and the focus has shifted from one of care to one of helping people to live with dementia.

With contributions from an international range of expert authors, Living with Dementia strongly advocates this new perspective through in-depth discussion of what people with dementia and their loved ones can do, and how they can actively make use of remaining resources. Topics covered include:

  • how to involve people with dementia in collaborative activities in the home, and the benefits this has on their cognitive and communicative abilities
  • ways in which identity can be presented and preserved through storytelling, and the impact on identity of moving from home into residential care
  • the benefits of a 'citizenship' approach to dementia: of recognising that a person living with dementia is an active agent, with the right to self-determination and the ability to exert power over their own lives.

This important new contribution to the dementia debate is truly enlightening reading for students across the full range of health and social care disciplines, and offers a fresh perspective to existing practitioners and those who care for people with dementia.

Lars-Christer Hydén is Professor of Social Psychology and Director of the Center for Dementia Research (CEDER) at Linköping University, Sweden.

Eleonor Antelius is a lecturer in the Department of Social and Welfare Studies and Senior Researcher and Assistant Director of the Center for Dementia Research (CEDER) at Linköping University, Sweden.

1. Introduction: from empty vessel to active agents  Lars-Christer Hydén & Eleonor Antelius
2. Towards a Phenomenological Conception of the Subjectivity of Dementia  Lisa Folkmarson Käll
3. Dementia in the Age of Migration: cross-cultural perspectives  Eleonor Antelius
4. Citizenship-in-and-as-Practice: a framework for improving life with dementia  Ann-Charlotte Nedlund & Ruth Bartlett
5. Pathways within Dementia Diagnosis  Charlotta Plejert, Danielle Jones & Elizabeth Peel
6. Communication and Collaboration in Dementia  Anna Ekström, Camilla Lindholm, Ali Reza Majlesi & Christina Samuelsson
7. Storytelling in Dementia: collaboration and common ground  Lars-Christer Hydén 
8. Dementia as a Chronic Illness: maintaining involvement in everyday life  Ingrid Hellström & Annika Taghizadeh Larsson
9. 'Home is Somewhere In-Between Passage': the stories of relocation to a residential home by persons with dementia  Parvin Poormamali
10. Self-help, Mutual Support and Advocacy: peers getting together  Linda Örulv.


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